Please watch our presentation as our founder Natalie Boehm describes what Aicardi syndrome is, the history of Aicardi Syndrome, how it affects the brain and eyes, symptoms of Aicardi syndrome, diagnosis and treatment, and outcomes.
Please watch our presentation as our founder Natalie Boehm talks about what yoga is, the benefits of hormones, how people with epilepsy benefit from yoga, and how to practice yoga.
By: Maura Toner What is Aicardi Syndrome? Aicardi syndrome is a rare neurogenetic disorder that affects 1 in 100,000 to 1 in 150,000 live births. Children born with Aicardi syndrome experience developmental delays, brain abnormalities and seizures, and often have very typical eye abnormalities, among other features. Another prominent feature of Aicardi syndrome is presence […]
Join the Defeating Epilepsy Foundation’s CEO & Founder, Natalie Boehm in welcoming Mary Ellen Gambon, as they discuss their journeys battling epilepsy and the work they have done to help the epilepsy community. Mary Ellen is a journalist and was diagnosed with epilepsy after an accident. Despite developing epilepsy Mary Ellen went on to receive […]
Please watch our presentation as our founder Natalie Boehm talks about what the postictal state is, symptoms, causes and risk factors, physical, psychological, and social recovery, and long-term impact symptoms.
By: Annemarie DeChellis What is the Postictal State? Symptoms and Prevalence The postictal state is the recovery period following a seizure where the patient may experience cognitive deficits, behavior changes, and psychiatric symptoms (Pottkamper et al., 2020). Headaches and cognitive impairment, such as problems with attention and trouble thinking clearly are reported most often. On […]
Making the decision to start a family is a big decision for anyone. For women who are battling epilepsy, it is an even bigger decision. Join the Defeating Epilepsy Foundation’s CEO & Founder, Natalie Boehm in discussing pregnancy planning.
By: Aliana Gordon What are hormones? Have you ever wondered what orchestrates the delicate balance of your heart rate, blood pressure, and bodily cycles? It is the hormones produced by organs and glands. When commonly thought about, hormones seem to only refer to testosterone, estrogen, and progesterone but there is a great assortment of major […]
By: Natalie L. Boehm, MBA, RBLP-T Pregnancy and Epilepsy Making the decision to start a family is a big decision for anyone. For women who are battling epilepsy, it is even a bigger decision. Many things need to be taken into consideration. Seizure activity, medication side effects, and pregnancy symptoms are just a few examples […]
By: Maura Toner Photo from www.shutterstock.com Cerebral Palsy is a group of neurological disorders that affect both motor and developmental skills. Cerebral palsy most commonly affects movement in different parts of the body, often causing problems with gait, muscle tone, and coordination in movement. The Centers for Disease Control and Prevention estimates about 1 in […]