The Defeating Epilepsy Foundation was founded by Natalie Boehm. Natalie was diagnosed with epilepsy at the age of two due to a traumatic brain injury. Despite developing epilepsy, Natalie went on to complete her education and find gainful employment. Natalie strongly feels that despite having epilepsy, there is no reason for her not to be productive and wants others with epilepsy to see that they can do the same. This is what she had to say:
“I decided to create The Defeating Epilepsy Foundation when I realized that despite advances in research and treatment for epilepsy, the stigma remained. The stigma that is felt at a global level needs to be addressed and we need to do what we can to get rid of it. Through education and advocacy, it is my goal to help others do just that. I encourage individuals with epilepsy to advocate for themselves and find a supportive doctor who will advocate for them as well. I hid for many years my epilepsy despite being seizure free for years due to the fear I would lose my job and not be able to get my medication to survive. Hiding what I have gone though would only allow the stigma to continue. It is through my life experience with epilepsy I hope to help others not to allow the stigma to haunt them. My goal is to network and connect to others worldwide who are ready to advocate and work together to defeat epilepsy.” – Natalie Boehm.
We encourage individuals with epilepsy to share their stories and allow us to support them on what is a very difficult journey at times. We are here to provide support to individuals, families, and caregivers who are all effected by epilepsy. Through education and advocacy, our team is working to put together the projects needed to make this happen. We are here to help you in every way we can. Please do not hesitate to reach out to us at firstname.lastname@example.org. Thank you for your support and together we will defeat epilepsy.