Bioethics and Epilepsy

Welcome to our Living with Epilepsy Series as our founder Natalie Boehm talks about what bioethics is, the four ethical rules, philosophical theories, bioethics and epilepsy, unethical practices, and advocating for better care.

Apert Syndrome and Epilepsy

By:  Catherine Joachin What is Apert syndrome? Apert syndrome is a congenital disease characterized by craniofacial abnormalities and premature fusions of coronal joints, fingers, and toes (Cleveland Clinic, 2021). This disorder is caused by genetic mutations in the fibroblast growth factor receptor-2 (FGFR2), a chromosome  10 gene responsible for bone development (Children’s Hospital Colorado, n.d.). […]

Pregnancy, Postpartum Complications, and the Importance of Advocacy

By: Aaliyah Ellison-McPeters Pregnancy Complications While expecting mothers who have epilepsy have several concerns during pregnancy, most of these mothers will have healthy babies, and pregnancy will not drastically affect their epilepsy. Common pregnancy complications that women with epilepsy face include slowed fetal heart rate, decreased oxygen to the fetus, preterm labor and birth, and […]